Day 614
I figured I should give you a little follow up to my appointment the other day. I meant to, but alas this is my life now. I probably saw a bright, shiny object and lost 5 or 6 hours of the day. It happens more than I care to admit. Actually, I was rearranging the pantry. I made it more kid friendly. I also swept the FUCKING LIVING ROOM! I say it like that because my kids are pigs. Also, I should pic up some stock from the Little Debbie corporation and get a little of my money back.
My PCP and I had a very productive appointment. I’m please to announce that not only do I think I have Trigeminal Neuralgia, but she agrees with me. It’s being treated now and I’m feeling a little better. I still don’t feel all the way better, but at least I don’t feel like I’m growling all the time. I have another follow up appointment in a month. She mentioned the possibility of referring me to another neurologist, that will be doctor number 9 since this whole shit show started! I’m finally starting to feel like I’m not alone or crazy. I joined a FB support group and just seeing that there are other people with the EXACT SAME struggles as me changed my mood and outlook completely. Thanks Mark!! Lmao!
I had a medicine increase again. The carbamazapine that I take was doubled. It’s the one that is supposed to help with TN so we shall see. I am having increased side effects as I am sensitive to pills, and I am currently swallowing 10 a day. FOOK ME! Some day, when I have some sort of income again I will get my medical card and try to get myself off this shit and smoke weed and eat weed.
We are without a vehicle now, as Steven broke it some how. We are rolling on the one year anniversary of when I stopped working. There’s been so much loss in this year. It’s hard to fathom I am strong enough to make it through all of it while managing some of the worst, most constant pain I’ve ever dealt with. I am proud of me.
It’s a goal of mine that I’m going to share more thoughts of my journey. I intend to write more, it’s a goal to do it daily. (I started this post on Monday, it is now Thursday. I’ve written every day.... baby steps). It will help my brain injury. It hurts my eyes, and makes my face twitch. I think it’s important for me to continue though. For all kinds of reasons!!
I had a medicine increase again. The carbamazapine that I take was doubled. It’s the one that is supposed to help with TN so we shall see. I am having increased side effects as I am sensitive to pills, and I am currently swallowing 10 a day. FOOK ME! Some day, when I have some sort of income again I will get my medical card and try to get myself off this shit and smoke weed and eat weed.
We are without a vehicle now, as Steven broke it some how. We are rolling on the one year anniversary of when I stopped working. There’s been so much loss in this year. It’s hard to fathom I am strong enough to make it through all of it while managing some of the worst, most constant pain I’ve ever dealt with. I am proud of me.
It’s a goal of mine that I’m going to share more thoughts of my journey. I intend to write more, it’s a goal to do it daily. (I started this post on Monday, it is now Thursday. I’ve written every day.... baby steps). It will help my brain injury. It hurts my eyes, and makes my face twitch. I think it’s important for me to continue though. For all kinds of reasons!!
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